Our Two‑Day Liver Transplant Evaluation: A Journey of Answers, Emotion, and Hope

There are moments in this journey where everything feels heavier — where the decisions are bigger, the conversations are deeper, and the future feels both fragile and full of possibility. Raegan’s liver transplant evaluation was one of those moments. What is often a one‑day process stretched into two full days for our family, each one filled with information, emotion, and a team of people committed to understanding her whole story.

What Those Two Days Looked Like

Across both days, we met with an entire multidisciplinary team — each person focused on a different piece of Raegan’s health and well‑being. We spoke with:

• Hepatology

• Transplant coordinators and advanced practice providers

• Surgeons

• Social work

• Child life specialists

• Nutrition

• Infectious disease

• Pharmacy

• Financial coordination

• Child psychology

• Educational support

Each specialist played a different role, but together they helped build a full picture of what Raegan needs and what her future could look like. It was overwhelming at times — two days of hard truths, hopeful moments, and deep breaths in between — but it was also reassuring. Every person we met saw her as more than a diagnosis. They saw her light, her strength, her story.

What We Carried With Us

The hardest part wasn’t the schedule or the number of people we met. It was hearing, in clear terms, how sick your child is — and how urgently they may need help. But there was comfort in knowing that Raegan is surrounded by a team that cares deeply and looks at her as a whole child, not just a chart.

And through it all, we were reminded that we’re not walking this road alone. Raegan has a medical team behind her, and she has a community behind her too — a community that prays, donates, shares her story, and believes in her even on the hardest days.

Looking Ahead

Soon, we will update you all on the specific highlights her team is reviewing to determine whether Raegan may or may not be a good candidate for a liver transplant. These decisions are complex, and we’re taking them one step at a time with as much hope and clarity as we can.

Why We Share This

We share our experience not for sympathy, but for connection. For awareness. For the families who will walk this road after us. And for Raegan — so she can look back one day and see the village that stood with her, lifted her up, and refused to let her light dim.

Thank you for being part of that village. Thank you for loving her. Thank you for shining with us.