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A heartfelt webpage from Adore Rae featuring purple and white text on a black background. Sections titled “From A Mother’s He

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Medical illustration showing how sickle cell anemia can lead to avascular necrosis. The image displays sickle‑shaped red blood cells on the left and an anatomical diagram of the pelvis and hip on the right, highlighting bone damage in the femoral head. The hip joint is shown with red coloration to represent tissue injury caused by reduced blood flow

Medical illustration showing how sickle cell anemia can lead to avascular necrosis. The image displays sickle‑shaped red blood cells on the left and an anatomical diagram of the pelvis and hip on the right, highlighting bone damage in the femoral head. The hip joint is shown with red coloration to represent tissue injury caused by reduced blood flow

Sickle Cell Anemia & Avascular Necrosis: Understanding a Painful but Common Complication

Shaynise Robinson

1 day ago4 min read

Medical illustration showing the progression of sickle cell disease inside a blood vessel. Normal red blood cells gradually become sickle‑shaped, leading to clumping, blocked blood flow, and vessel obstruction. The panels highlight how sickled cells cause pain and organ damage.

Medical illustration showing the progression of sickle cell disease inside a blood vessel. Normal red blood cells gradually become sickle‑shaped, leading to clumping, blocked blood flow, and vessel obstruction. The panels highlight how sickled cells cause pain and organ damage.

Understanding the Connection Between Sickle Cell Disease and Brain Aneurysms

Shaynise Robinson

Mar 243 min read

Illustration of a Black mother with closed eyes and hands over her heart, standing calmly in a purple “Adore Rae” shirt while chaotic medical scenes surround her. Behind her are storm clouds, an ambulance with flashing lights, two medical professionals in discussion, and a hospital monitor showing unstable vitals. In the lower corner, a sick child lies in a hospital bed with an oxygen tube and a teddy bear. Text reads “When Calm Becomes a Survival Skill” and “The Hidden Reality of Caregiving in Chronic Illness.”

Illustration of a Black mother with closed eyes and hands over her heart, standing calmly in a purple “Adore Rae” shirt while chaotic medical scenes surround her. Behind her are storm clouds, an ambulance with flashing lights, two medical professionals in discussion, and a hospital monitor showing unstable vitals. In the lower corner, a sick child lies in a hospital bed with an oxygen tube and a teddy bear. Text reads “When Calm Becomes a Survival Skill” and “The Hidden Reality of Caregiving in Chronic Illness.”

When Calm Becomes a Survival Skill: The Hidden Reality of Caregiving in Chronic Illness

Shaynise Robinson

Mar 172 min read

Video of a mother and daughter in the kitchen measuring out Essential Care Junior formula together. The mother pours the powder while Raegan watches closely and helps hold the container. Both appear focused and gentle with each step, showing their daily routine of preparing Raegan’s nutritional supplement.

Video of a mother and daughter in the kitchen measuring out Essential Care Junior formula together. The mother pours the powder while Raegan watches closely and helps hold the container. Both appear focused and gentle with each step, showing their daily routine of preparing Raegan’s nutritional supplement.

The Nutritional Formula We Chose for Raegan — And Why I Feel Called to Share Our Experience

Shaynise Robinson

Mar 104 min read

✨ Caregiver’s Corner — Post #1: Living Between Timers

✨ Caregiver’s Corner — Post #1: Living Between Timers

✨ Caregiver’s Corner — Post #1: Living Between Timers

Shaynise Robinson

Mar 43 min read

“A young girl with an NG tube on her cheek smiles softly while wearing pajamas. The photo shows her at around nine years old, happy and confident, capturing her joyful personality before her chronic illness journey became more complex.”

“A young girl with an NG tube on her cheek smiles softly while wearing pajamas. The photo shows her at around nine years old, happy and confident, capturing her joyful personality before her chronic illness journey became more complex.”

5 Ways to Remove the Stigma Around NG Tubes: Inspired by Raegan's Journey

Shaynise Robinson

Feb 242 min read

Raegan's Mother in the video giving an update on Liver Tranplant

Raegan's Mother in the video giving an update on Liver Tranplant

Liver Transplant Update — Part 2

Raegan's Updates

Shaynise Robinson

Feb 181 min read

person with sickle cell disease getting a blood transfusion risking iron overload

person with sickle cell disease getting a blood transfusion risking iron overload

💜 Understanding Iron Overload in Sickle Cell: Raegan’s Newest Challenge

Shaynise Robinson

Feb 103 min read

the Mom of Adore Rae is speaking to give a liver transplant update

the Mom of Adore Rae is speaking to give a liver transplant update

Liver Transplant Update: Part 1 — What We Learned

Raegan's Updates

Shaynise Robinson

Feb 42 min read

A collection of educational materials about pediatric liver and organ transplants displayed on a light surface. Items include illustrated booklets titled “Organ transplants: What Every Kid Needs to Know,” “How to Find a Living Donor,” and a spiral-bound “Liver Transplant Handbook for Patients and Families” from Children’s Healthcare of Atlanta. A green pamphlet outlines transplant medication tips and contact information. The materials are designed to support children and families navigating transplant care.

A collection of educational materials about pediatric liver and organ transplants displayed on a light surface. Items include illustrated booklets titled “Organ transplants: What Every Kid Needs to Know,” “How to Find a Living Donor,” and a spiral-bound “Liver Transplant Handbook for Patients and Families” from Children’s Healthcare of Atlanta. A green pamphlet outlines transplant medication tips and contact information. The materials are designed to support children and families navigating transplant care.

Our Two‑Day Liver Transplant Evaluation: A Journey of Answers, Emotion, and Hope

Shaynise Robinson

Jan 82 min read

Golden-brown empanadas on a blue plate with purple floral decor and Adore Rae branding.

Golden-brown empanadas on a blue plate with purple floral decor and Adore Rae branding.

🌿 The Power of a Holistic Diet in the Fight Against Chronic Illness

Shaynise Robinson

Dec 30, 20253 min read

Lighthouse in the dark shinning the light, representing Rae, The Light

Lighthouse in the dark shinning the light, representing Rae, The Light

Top 10 Reasons Online School Supports Children with Chronic Illness

Shaynise Robinson

Dec 18, 20252 min read

- The condition: hepatic encephalopathy

- The condition: hepatic encephalopathy

When the Liver Affects the Mind: Raegan’s Fight Against Hepatic Encephalopathy

Shaynise Robinson

Dec 9, 20252 min read

a little girl with oxygen on who faces challenges from cirrhosis of the liver

a little girl with oxygen on who faces challenges from cirrhosis of the liver

💜 Cirrhosis of the Liver: A Sickle Cell Complication, Not an Alcohol Story

Shaynise Robinson

Dec 2, 20252 min read

illustration showing sickle cell complications for Raegan

illustration showing sickle cell complications for Raegan

💜 Understanding Sickle Cell Anemia: Raegan’s Journey

Shaynise Robinson

Nov 25, 20252 min read

Welcome to Raegan's Journey

Welcome to Raegan's Journey

Welcome to Raegan's Journey

Shaynise Robinson

Nov 6, 20252 min read

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